Finally dry enough to go outside again – July 30th

Niilo enjoyed wheeling out to the newspaper box and sitting perusing the paper in the welcome sunshine this evening.  And he very much enjoyed the raspberries and carrots Joan and Heather picked while he visited with Nancy D, whose new farm he visited last week.

Other outings have included visiting the Pioneers Home along with Mom, Quaker meetings and potluck.  Thanks for visits from Dick, Nancy H.D., Brian, Caroline, DeVonne; continued stimulation, meals, and other help from Marilyn, Dot, Chena, Alex, and Heather; and calls from Nonni, Sanni, Dane, Harry, and occasional other Finnish-American friends.

Niilo communicates that he would like to be more mobile and self-sufficient and finds it frustrating that his brain and body are still lacking the organization and strength for greater progress.  Still, he sometimes smiles and laughs and usually enjoys conversation and having news read aloud. He transfers well to and from the car, sometimes drives his wheelchair himself, and walks with the walker some every day.  Things may get better.

Heather

It’s All Relative

Tervehdys Suomesta,

Koposet society is going to have annual meeting this weekend near Jyväskylä. We have published books about Koponen families covering them from 1600 until 1860. We are collecting now information after 1860.
I noticed that Niilo is born 1902, an I wonder if You have the information about his family before that, so we could try to link him to our book.
I used to work with Jari Ailio and he gave me information on Your family.

All the best wishes to Niilo and all,
Ahti Koponen

2008/07/14 at 9:17 PM

NOTE FROM CHENA:  Niilo of this blog was born in 1928, not 1902.  His father, Niilo William Koponen was born in Riihimaki, Finland on October 28, 1902.  Best wishes to Jari, Dad’s first cousin in Finland.  He is Niilo Emil Koponen’s mother’s nephew, and the families have all too rarely visited each other.

All Honored

We are greatly honored to have David McReynolds make a post here. For those who don’t know him, David was the Socialist Party presidential candidate in several recent presidential election, using his campaigns to speak out for democratic socialism and human rights for all.

–Ken Burch

2008/07/11 at 5:17 PM

Bright June Thoughts

Greetings to all of you –

I was so sorry to hear about Niilo’s fall and subsequent problems. I had some unfortunate fallout after spine surgery in April, so I Really sympathize with his troubles and all of your time, support, and care. Please accept my hugs, best wishes, and bright thoughts, especially at seeing Niilo out and about for some time in the sun.

Cheers,

June Pinnell-Stephens

2008/07/10 at 5:57 PM

Getting out is fun- Dog trials, Quaker Meeting, Garden

Though still not on his own two feet, Niilo has gotten out more lately.  The Dog Agility Trials were great!  Much like a horse-show Trails class, they navigate jumps, tunnels, bridges, teeter-totters, hoops, and pole-bending, called weaving for dogs.  Joan, having been on the organizing end of shows in the past, appreciated the job of the ring crew.  Niilo didn’t have a lot to say, but seemed to enjoy it.

Weather has been great:  warm to hot with squalls or pummeling showers.  Niilo enjoys the flowers, as do we all.

Heather

Homestead Foreman – July 3rd, 4th, 2008

  Last evening, Dad spent 2 hours outdoors.  With numerous trips to the ends of the driveway to transport tools on the wheelchair handlebars, he supervised the digging of a new hole for the mailbox and transfer of mailbox and newsbox to the lower end of the loop driveway.  He enjoys seeing the flowers too.

  Today, steeled by a nap and juice, Dad walked some 15 feet with the walker.  If the clouds don’t turn ominous, Joan, Niilo, Chena and I will soon go down the hill for a stroll at Creamer’s Field.   We are so lucky in Fairbanks to have citizen-sponsored wild areas such as Creamers!

  Heather

The Road

Yike, Dana and Kotty and many others who are tuned to this station….this–where Dad’s head and body are–is such an unknown place for a lot of us.  Dad calls to me “Chena….” and then says things I just don’t understand.  He tells Caroline, a dynamic & fascinating woman who has spent decades living all over Alaska and most recently Fairbanks–and then volunteers to come into our home weekly to do she probably doesn’t know what but to Heather and me is giving us a few minutes in the “off” mode–about trolleys in New York and seems participatory in the discussion of handicapped issues before the legislature during “his day.”  Caroline tells us about his work for the handicapped parking signs and curbless slots in the sidewalks.  Gosh, I wish I could listen in all day.

But there is laundry to do and floors to clean.  The fields are growing up with lovely grass and the dandilion have turned from beautiful yellow to “let’s spread ’em” white.  Alex spends time getting the mower charged up and a new belt put on, only to find out the tire is flat.  No problem: use the air compressor to fill it.  Shucks, the air compressor trips a breaker.  Now what’s wrong?  Two machines to fix.

Can’t tell you how much good it does us, Dana and Harry and Bob to hear your voices when you call, read your words when you write.  We take it day to day and week to week and every-too-soon things are different and just as scary as before.  Nonni calls often and it is such a period of normalcy to hear him, from Vermont, talk about his life (he doesn’t think it is normal at all, but we know better).

Kotty, your grandpa’s stories are incredible and immense.  Almost no one is telling them but I guess that is the way of life.  Just live  yours to the fullest you can.

Dad did OK today.  Not big on the avocado I made him for lunch (gosh, I almost am over getting offended people don’t like how personal I make their food!) but strong on his transfers.  The old egg salad on dark rye was acceptable, and he was so thirsty.  I can’t tell so much how much he integrates from what we try to communicate with him.  I also don’t think I understand all he says.  It must be frustrating for him.  Hugs and love is what we end up with.

Chena

Posted photos

A certain niece was asking for historic photos.  I dug through my digital collection and came up with these.

As time allows, we’re searching for older ones that will have to be scanned. If anyone has photos they’d like to share, let us know.

– Gary

Prognosis: “He will live until he dies.” June 27th 2008 Diagnosis: Deep Vein Thrombosis

Niilo spent some 7 hours in the emergency room tonight, due to left leg swelling and new-onset calf pain.  Heather, then also Chena, and before discharge, Gary, were with him. He got his blood drawn again, a full-leg ultrasound, and a lung ultrasound to check for blood clots.  Results: No pulmonary embolus, but a deep vein thrombus (clot) the length of his leg.

The prognosis is not good: With a history of a bleed in the brain from January 2008 and high risk of falls, Niilo is a very poor candidate for blood thinners, the usual therapy.  Blood thinners also wouldn’t dissolve the clot, only prevent it from growing while allowing the body to gradually (months or more) dissolve it.  With or without anti-coagulants, there is still a substantial chance of a piece of clot breaking off and lodging in his lungs, very possibly fatally.  As the clot has surely been months in the making, timing of such an event is unpredictable, if it happens at all.

In the meantime, Niilo was cheerful this evening.  He had only a couple of transient bouts of pain, and seemed to enjoy the atmosphere, talking and laughing far more than usual.  He even stated that he understood the diagnosis and prognosis and accepts it.  At home, he asked me to stay with him for a while by his bed as he goes to sleep.

The doctors say life can go on as before, just elevating Niilo’s leg to heart level whenever he’s not actively doing something.  The swelling and episodic pain may or may not get worse.  About how long Dad may be with us, the doctor said, “I predict he’ll live until he dies.”  What more can we ask for?  If Dad is as cheery most of the rest of his days as he was today with this stuff going on, he’s a lucky man.

Heather